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Author Topic: Bored with the old new content topic...  (Read 20019 times)
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glinda_w
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« Reply #75 on: November 22, 2010, 02:46:51 pm »

It sounds very much like the reasoning behind doctors denying vasectomies and tubal ligations to people in their twenties (which, yes, does happen), because "they might change their minds later."

Oh bloody hell. I was hoping that wasn't still going on; encountered it 30 years ago, though eventually I got to Planned Parenthood, went through the obligatory (and I'm in favor of it!) "are you really sure" counseling, and got my tubal, finally, at 29. I'd wanted one since mid-teens, but all the doctors gave me that same "oh, you'll change your mind" crap, even after I said, firmly and frequently, "I am a carrier for retinitis pigmentosa, and I will not pass it on."

Gah. (I'm kinda... short fused, in unpredictable roller-coaster ways, right now; if I've crossed a line, somebody tell me?) (Had to have the Annie-cat put to sleep Friday morning. New feline will choose me early next week.)
 
(And keeping those Beta genes in the genepool is actually a viable argument for why Chaz should have children!).

*deletes four rather... intense... paragraphs*

*thinks*deletes again*

That's dangerously close to advocating forced child-bearing, or at least creating. That, or an argument that at least his sperm should be saved for... research?... goes far too far into the Land of Non-Consent. Which, in my thinking, leads to Niemoller's quote, eventually, because where do the lines get drawn, and by whom, and if one incidence is allowed, how many others will follow?

Oy. Deep waters here.

--g, heading back to the shallows for a while. And hot chocolate do go with that dusting of snow outside, just because I can. Mexican chocolate, in fact, because I'd never had it until MG gave me a little block of it, after I'd bought a molanillo at that store in the Market...
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glinda_w
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« Reply #76 on: November 22, 2010, 02:47:41 pm »

There are all sorts of things that I want very much that I have made the decision not to have, over the years. It doesn't always help with the wanting, though. In some cases, it makes it worse.

Yeah. This.

Yeah. Indeed.
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glinda_w
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« Reply #77 on: November 22, 2010, 02:52:29 pm »

I've been thinking about eugenics after a recent post elsewhere from someone actively advocating for a fertility technique that allows selecting disability-free embryos, which, as someone with, probably, two genetically linked disabilities, I'm less than comfortable with and that influenced my point.

Hmmmm. I'm... if not completely disagreeing there, I'm at least off at some noticeable angle. The thing is, if there'd been a technique to select an embryo that did *not* have RP... well, my life would've been very very different. I'd have had kids. Though in my case - and I can't speak for anyone else who would use that sort of technique, only for myself - it wasn't that I would think of a blind child as somehow lesser (in fact, if we'd stayed married, my ex-husband and I were considering adoption, and might have sought out a blind child, simply because I could handle all the ins and outs of raising one to be extremely independent, as my mother was), but because I couldn't have handled the guilt of passing it on. YMMV, free advice is worth what you pay for it, yadda yadda.

(OK, I'm really stepping back from the 'puter now. Really I am.)
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Elizabeth Bear
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« Reply #78 on: November 22, 2010, 03:14:09 pm »

If I could get rid of *my* bipolar, on the other hand (retroactively make it vanish?) I'd be on that like white on rice. It's not interesting, it's not useful, and it's not *me*--it's an illness that I have to fight through to be me.

I feel very cheated about all the time I've lost to it. Years of my life, and all kinds of good things, and there's been plenty of collateral damage.
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~~~~~~~~~~~~~
Chaz: "As if puberty weren't stressful enough."

Todd: "See? That's why we're better than all those other law enforcement agencies. Correct use of the subjunctive."
glinda_w
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« Reply #79 on: November 22, 2010, 04:11:46 pm »

I feel very cheated about all the time I've lost to it. Years of my life, and all kinds of good things, and there's been plenty of collateral damage.

Oh. OH. THAT. Except lifetime disthymia and frequent major depression. Yes to the years and good things lost, and the collateral damage.

*sympathy*

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MadGastronomer
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« Reply #80 on: November 22, 2010, 04:47:07 pm »

I don't know when you had the conversation with him about not naming stuff after him, but is it possible this was at a time when he was feeling pretty depressed? About Hafidha, PTSD, failure to save that last kid in Natchez, etc? Because I totally understand that he has major family issues at the best of times, but ... he does like kids. And I can easily see that when he is feeling bad about himself that would be a particularly touchy topic. But I suspect that if he was generally feeling more self-confident and secure and happy, and/or if he gets married, you might get a different answer.

I don't remember offhand what was going on with him at the time. It was before Refining Fire, is all I can tell you.

Quote
Alternatively, having killed his shoggoth by accidentally starving it to death while he was being starved on purpose, he might have extra issues attached to the shoggoth thing and not want you to name something after him that people do occasionally forget about and kill by neglect.

No, not only was it before RF, but he explicitly gave permission for that, and said he was fine with people naming anything other than children after him.

I disagree. Chaz very much wants kids. (See his first Livejournal Down The Rabbit Hole Day post, and "Smoke and Mirrors," among other places.)

He feels it would be horribly irresponsible to have them, though. Which is not the same thing as not wanting.

There are all sorts of things that I want very much that I have made the decision not to have, over the years. It doesn't always help with the wanting, though. In some cases, it makes it worse.

You're right, badly worded. He does not intend to have kids. He does not apparently intend to have kids who DON'T share his genetics, either, which was why I started suggesting other reasons he might not intend to have kids, including early death, not wanting to continue learned behaviors from his family (my brother has specifically asked me to keep an eye on him to make sure he doesn't start acting like our dad, so kinda like that), etc.

MG? I think you might be getting a little triggery and invested, and now might be a good time to take a couple of deep breaths and not try so hard to control/ shut down the conversation, okay?

--Bear in a moderator hat

Yes'm.

MG, sorry if I accidentally pushed buttons. I've absolutely no problem with people opting not to have children; I don't have any myself, though that's circumstances rather than choice. I've been thinking about eugenics after a recent post elsewhere from someone actively advocating for a fertility technique that allows selecting disability-free embryos, which, as someone with, probably, two genetically linked disabilities, I'm less than comfortable with and that influenced my point. Chaz is the one known surviving Beta geneset*, as a scientist, as a strategist, there is value in retaining access to that. That that conflicts with Chaz's decision not to have kids concerns me as a matter of individual rights, but in a world facing the Anomaly, Chaz is a weapon, not simply an individual and the good guys need to consider every angle. I can look at something from two different angles and hold differing opinions depending on whether I'm wearing the friend hat or the strategist hat. Is El Jefe's thinking likely to be all that different?

* Hope Mitchell is dead and burned, Hafs turned out not to be a true Beta, forgetmegirl has been forgotten.

DWG, the apology is much appreciated.

Just a note, though: apologies are much more effective if you do not, immediately thereafter, do the same thing you're apologizing for again.

I'm dropping the topic now, because I don't think I can discuss this calmly.

If I could get rid of *my* bipolar, on the other hand (retroactively make it vanish?) I'd be on that like white on rice. It's not interesting, it's not useful, and it's not *me*--it's an illness that I have to fight through to be me.

I feel very cheated about all the time I've lost to it. Years of my life, and all kinds of good things, and there's been plenty of collateral damage.

I knew that about you, actually, and was trying very hard to make it about my experience, and the experience of some other people with various disabilities, but not about the experience of everyone. I hope I did not sound as if I was.

My bipolar is a part of me for several reasons: I spent my entire childhood having early symptoms, and having them be part of what made me different, and learned to define myself largely by my differences. I've mostly moved on from defining myself by my differences, but continue to identify strongly with the things that make me different, if that makes any sense. But, essentially, I've been dealing with it all my life, and it's become as much a part of me as having curly hair, because I have never known me without it. (This was the point of extrapolation for Chaz.) Not everyone with bipolar has this experience, and not everyone who does identifies their disease as part of themselves. I just happen to.

Also, honestly, before I did the work of learning to cope with and live my life with my disease, I wasn't, personality-wise, a terribly effective or good (by my own definitions) person. I like who I am now. I like where I am now, and what I've done with my life, and my bipolar is part of the cause of that. I spent years struggling against it, and defining myself by that struggle, and the struggle changed me and made me better. Now I don't struggle much, but letting go of it . . . letting go is not something I'm terribly good at, and while I've learned to do it when I must, I don't need to let go of this, so I won't.

I hope they DO discover a cure some day, so that the people who want and/or need to get rid of their bipolar can do so. I just wouldn't take it myself.

This is, actually, a big topic in disabilities rights circles, and for most types of disabilities, there is this split. I hope we can learn to cure ALL of them, or prevent them. But there will be those who don't want to be cured. And that's our choice to make.

I don't know where Chaz comes down on this, and I can't ask him. Not without building a whole fishy-sounding hypothetical, which I am just not going to do. But it IS something he's had his whole life, and I think we ought to consider that he might not want a cure. And his metabolism is a result of his anomaly.
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tylik
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« Reply #81 on: November 22, 2010, 05:32:58 pm »

If I could wave a magic wand and get rid of the spine injury? Oh, yeah. (Yeah, I know that's not the question.) Erase that part of my life? Oh, no. It's wasted a lot of time, but the changes that came out of it are things I don't want to have missed, even if individually they often weren't much fun.

If I could retroactively get rid of my allergies? Or at least take the edge off of them? Yeah, that I'd do.

The neurochemical stuff? Eh, really I got the long end of the stick there. Sometimes has made my life more difficult, certainly made the whole figuring out how to deal with folks a lot more involved, but I pretty much like how my head works.
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MadGastronomer
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« Reply #82 on: November 22, 2010, 05:43:44 pm »

Yeah, I'd get rid of the allergies, the recurring sinus infections and the asthma in a second, if I could.
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Alena
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« Reply #83 on: November 22, 2010, 06:00:55 pm »

And my sense of identity includes me-having-allergies.  So.  *g*  Have we proved-by-anecdote yet that for any given condition, someone will think of it as part of their identity?  (Although I can't say what I'd do if someone offered me a full cure.  Spend about a week staring at walls and not hearing a word anyone said, probably.)

HebrewRose: Well, yeah--but he has two other ex-wives, and while we might well know if Kay Baylor had kids by him, we don't have anything but a name on Vivian, which was why I suggested her.  But tylik, yes, it'd definitely be a job and a half to keep that sort of thing under wraps in his office. 

Also, I feel like Reyes would want to read comic books with his kid, if he had one, but that might just be my imagination.  On the other hand, it wouldn't necessarily have come up in his POV/conversation.
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CJ
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« Reply #84 on: November 22, 2010, 07:22:35 pm »

I wonder what the stats are about FBI folks and families. I think I recall reading somewhere something about high divorce rates, but I don't remember if that was FBI, CIA, or what. I would not be surprised to find that the job takes a toll on a lot of FBI marriages. Or that some FBI folks, seeing the awful things they see in their work, opt not to have kids. Having only one member of a seven person team be married with kids would be odd statistically for the population as a whole, it might be statistically normal for the population of the FBI.
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DavidG
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« Reply #85 on: November 22, 2010, 08:13:08 pm »

If I could wave a magic wand and get rid of the spine injury? Oh, yeah. (Yeah, I know that's not the question.) Erase that part of my life? Oh, no. It's wasted a lot of time, but the changes that came out of it are things I don't want to have missed, even if individually they often weren't much fun.
[snip]
The neurochemical stuff? Eh, really I got the long end of the stick there. Sometimes has made my life more difficult, certainly made the whole figuring out how to deal with folks a lot more involved, but I pretty much like how my head works.

This!

I could do without the spinal damage, but that's not genetic and doesn't really affect the decision to perpetuate my geneset. The dyspraxia and EDS/HMS, those are genetic: I'm not sure whether the EDS/HMS would be disabling without the spinal injury, there's probably a good chance it would as I'd already had some anomalous joint injuries, but I don't think I would hesitate more than a moment or two to have kids in spite of it (OTOH I know an ex-colleague had decided against kids because of her EDS); the dyspraxia I think has an awful lot to do with shaping who I am, and I absolutely would not hesitate to pass it on (I tend to identify strongly with the neurodiversity movement's PoV). And the experiences disability has brought me, those I wouldn't trade, because they have made me a deeper, and I think better, person and given me the chance to fight for something I believe is important.

WRT cures, I'm open to one for the spinal damage (I'm actually waiting to see a surgeon to discuss what's going on and what the options are), but the EDS I'm iffy about, I'd need to know a lot more about the changes in my biochemistry it would incur, and the dyspraxia we're just not going there, 'fixing' me at the neuronal level cuts far too close for comfort to the hardware side of who I am, and I happen to like me.

I get very uncomfortable when people advocate for selecting out disabilities before and during pregnancy. Actually, strike that, I get flaming furious (and I may have had another alliterative eff word in mind) if it's being proposed as a general policy, because that's an attack on the worth of me and people like me. I accept that people have a right to choose on an individual basis, but I'd be lying if I said I was comfortable with it. Imagine my parents had been told 'your child will be disabled, but we can fix that,' how can I support an idea that might have meant I as an individual wasn't ever born and some other embryo was selected instead? I have online friends with spina bifida whose parents actually were offered that choice and pressured to take it.

So when we talk about Chaz deciding not to have kids because of not wanting to pass on the DNA of his 'disability', that pushes my buttons.
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DavidG
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« Reply #86 on: November 22, 2010, 08:20:35 pm »

Having only one member of a seven person team be married with kids would be odd statistically for the population as a whole

It's actually the case for the circle of friends I holiday with, five or six guys, the youngest approaching 40, only one married. And we've been friends for a long time, it's not simply a case of the unmarried guys drifting together. OTOH the friends I don't holiday with (I'm the only one common to both groups) are all married or formerly married and up to their armpits in kids.
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Elizabeth Bear
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« Reply #87 on: November 22, 2010, 08:34:14 pm »

I don't think it's been categorically proven that Chaz is against having kids who are not related to him by DNA. If anything, he certainly goes out of his way to make himself available for other people's kids.

On that note, I'd like to thank everybody for being so willing to work together to discuss something very difficult and contentious and triggery, for a lot of very valid reasons. You guys rock.
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~~~~~~~~~~~~~
Chaz: "As if puberty weren't stressful enough."

Todd: "See? That's why we're better than all those other law enforcement agencies. Correct use of the subjunctive."
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« Reply #88 on: November 22, 2010, 08:48:22 pm »

Proving Alena's point upstream that you will find personal opinions on every end of the scale--I was diagnosed with bipolar in first grade, so long ago that it was still manic depression, and the only treatment was lithium until you killed yourself. Thankfully, my mom didn't allow me to be medicated, and by the time I was 25 I had learned an awful lot of coping strategies, most of which revolve around the cognitive strategy of externalizing the disease.

So no, bipolar isn't part of my self-image. If I wouldn't be me without it? Thank god. I might be somebody who had had a fighting chance at happiness. If another baby could have been born who didn't have bipolar? That would also be an acceptable outcome for me.

On the other paw, I fully accept that I'm way out on the extreme end of my reaction to it, and I think other people should be empowered to make those decisions for themselves. However, if somebody had decided that I should be born this way when there was another option, I don't think I could ever forgive them--so I have a very triggery response to what DWG is saying.

I think Chaz's reaction to his neurology is very different than mine. I think it is a huge part of his self-identity, and I think he really enjoys his abilities and if somebody offered him the tradeoff of losing them and living to be eighty, that would be a very hard choice for him. Because, as Daphne's pointed out, he doesn't know what it's like to be a mere mortal. He *tries*, but it's empathy, not comprehension from experience.

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~~~~~~~~~~~~~
Chaz: "As if puberty weren't stressful enough."

Todd: "See? That's why we're better than all those other law enforcement agencies. Correct use of the subjunctive."
DavidG
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« Reply #89 on: November 22, 2010, 08:49:35 pm »

That's dangerously close to advocating forced child-bearing, or at least creating. That, or an argument that at least his sperm should be saved for... research?... goes far too far into the Land of Non-Consent. Which, in my thinking, leads to Niemoller's quote, eventually, because where do the lines get drawn, and by whom, and if one incidence is allowed, how many others will follow?

The problem is I look at this from the PoV of disabled people being pressured, either directly or indirectly by society's negative view of disability, to not have children because of their disabilities, or to select for non-disabled babies. Imagine the outcry if people were pressured to make those decisions based on the race or sexual orientation of their child. It makes me deeply, deeply uncomfortable and from where I'm standing I feel I'm the one thinking about Niemoller, and in particular about the fact that though Aktion T4 was one of the first of the holocausts, and though the sick and disabled were initially in Niemoller's speeches, somehow they never seem to be in the versions that people quote now.

And on a secondary level I can separate my own concerns with individual rights, put myself in the PoV of someone fighting the anomaly, and take big picture positions even I don't think are ethical, but which are potentially necessary given the situation being painted. I've been a roleplayer for years and years, I don't have a problem with envisaging  and arguing for positions I don't necessarily approve of myself. If I was in Celanto's position I'd be very uncomfortable, because the needs of the position would place me in conflict with my own ethical concerns, and the needs of the position are so important I might be forced to take decisions I'd rather not. I think we're seeing that with Reyes' request for Chaz to operate as a secondary conscience; there are decisions he has to make as WTF unit chief which he isn't comfortable with and which he wants someone second-guessing him on.
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